What is OPSUMIT®?
OPSUMIT® is a prescription medicine used to treat pulmonary arterial hypertension (PAH, WHO Group 1). PAH is high blood pressure in the arteries of your lungs. OPSUMIT® can:
The most important information about OPSUMIT® (macitentan)
Do not take OPSUMIT® if you are pregnant or trying to get pregnant. OPSUMIT® can cause serious birth defects if taken while pregnant.
Women who are able to get pregnant must have negative pregnancy tests:
Caring for Someone With PAH
Caregivers play an important role in helping loved ones live with PAH. One thing you can do is to keep talking. Remind your loved one that you’re there to offer support and help along the way.
Here are some practical things you can do to help a loved one with PAH.
Select each item to learn more.
Educate yourself
about PAH
Educate yourself about PAH
There are several websites that can help you to become more informed about PAH. You can see a list of additional resources to help you get started.
Find treatment centers near travel destinations
Find treatment centers near travel destinations
If you and your loved one are taking a trip out of town, look up nearby centers that have PAH specialists. Talk to your doctor about finding a specialist.
Speak with a PAH specialist
Speak with a PAH specialist
If your loved one doesn’t already have a specialist, do some research to help find one.
Be open and honest
Be open and honest
At times, you may struggle with the responsibilities that come with caring for someone with PAH. Don’t be afraid to express how you’re feeling or ask for help from others.
Organize and plan
Organize and plan
Life with PAH has many small details to keep in mind. There are healthcare provider appointments to keep track of and monthly prescriptions to be received. Record important dates in a calendar or journal. This can help your loved one stay on track with treatment.
Offer support and learn to delegate
Offer support and learn to delegate
It’s helpful to decide who should attend healthcare provider appointments with your loved one. Remember, you need support, too. Ask other family members or loved ones to pitch in. Want to talk to another caregiver? The Pulmonary Hypertension Association has a free Caregiver-to-Caregiver Support Network.